My Aspie Chronicles.....

I realize that I am going to have to rewind a little bit because I haven't blogged in a few months. So here is the 411 on the current goings on.

Autism Conference-The autism conference was absolutely amazing. I was a nice feeling to walk into a room and see so many people. There were many educators and parents from around our area. It is a great feeling knowing that you aren't alone. Not only was it great to talk to people who know exactly what you are going through, but I feel as a parent I should stay up and current on the current research as well as other issues that as a parent of an Autistic child might need to know. After the conference, I had a lot of questions. I took lots of notes and made sure that I jotted down any questions I wanted to remember to ask Mason's doctors. During the conference, there were a couple things that caught my attention. One was sensory integration therapy and the other was psycomotor epilepsy. After the conference, Mason had an appointment with a behavioral pediatrician in Lubbock.

Lubbock-The pediatrician in Lubbock was absolutely wonderful. She was very informative and listened when I mentioned that I was concerned about psycomotor epilepsy and was interested in having Mason evaluated for Sensory Integration Therapy. Mason's regular pediatrician in Abilene has told me that Sensory Integration Therapy was trendy and there was no scientific proof that it worked. I asked the Dr. in Lubbock about it she said that he was right however; that Sensory Integration Therapy is not a fix, which I already knew. But that it can be used to helped the child attain certain goals. To date he is not getting it yet but we will see what the future holds. The Dr. in Lubbock gave Mason an EKG. For those who don't know what that is, it is where they check the functioning of the heart. I was told that now it is something pretty much standard for children who are on long term medications just as a precaution. She also wanted Mason to have an EEG. That is where they check the electrical activity inside the brain. All in all it was a good visit and he will be going back to Lubbock every six months for a check-up with the Dr.

The most recent thing that is going on is Mason has had his EEG. I was devestated to find out that the results were abnormal. What they told me was that they saw slowing of brain activity. I am unsure of that that means. They told me that could mean siezures or it could be any number of other brain disorders. I thought for sure that the test was routine and that everything would be okay. I was told that I shouldn't be suprised that I knew Mason wasn't normal and I should expect things like this but the truth is. It doesn't matter that I know Mason has problems, everytime you hear that something else is wrong it is still devastating and you still need to grieve. Mason has been referred to a neurologist. The appointment still hasn't been scheduled yet so I am still waiting for answers.

If I could leave any advice for parents like me it would be don't give up. If you truly think that something is going on push the issue to have it looked at. You know your children best. Be their advocate.